Patient Stories

Meet the young patients who inspire us to do our finest work. Twins who needed lifesaving surgery while still in their mom's womb. A teenager whose new lungs helped her return to cheerleading. A toddler who faced and beat an aggressive form of leukemia. Follow their journeys here.

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4-Year-Old Has a Total Pancreatectomy

A 4-year-old with pancreatitis and damage to her lungs and heart was one of the youngest U.S. patients to undergo a total pancreatectomy. Read her story.

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A Cure for Boy's Frightening Epileptic Seizures

A boy with hallucinations was diagnosed with epilepsy. After pediatric neurosurgery at UCSF to remove an abnormal growth on his brain, he's seizure-free.

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A Lifesaver for Baby: Specialized Pulmonary Hypertension Care

A baby with a congenital diaphragmatic hernia (CDH) and pulmonary hypertension (PH) has hernia repair surgery and infusion therapy for PH at UCSF.

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After AVM Brain Surgery: From Stroke Patient to SnowFest Queen

A girl born with arteriovenous malformation (AVM) has a stroke, undergoes pediatric brain surgery at UCSF, and returns to school and snow skiing. See more.

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After Two Lung Transplants, Teen Gets Her Life Back

A high school cheerleader with severe pulmonary hypertension returns to the sidelines after two lung transplants. Read her inspiring story.

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Bone Marrow Transplant Helps Baby Beat Aggressive Leukemia

A girl with difficult-to-treat leukemia (AML) recovers, thanks to care from a pediatric leukemia expert at UCSF. See the whole story.

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Boys' Friendship Began in UCSF Dialysis Unit

Boys with focal segmental glomerulosclerosis met in our pediatric dialysis unit and have supported each other on their kidney disease journey ever since.

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Dad's Liver Donation Saves Baby With Biliary Atresia

A father donates part of his liver to save the life of his baby son born with biliary atresia. Find out why a liver transplant was the only option.

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Dramatic Recovery for Teen With Pulmonary Hypertension

Follow a teen's pulmonary hypertension journey, from always out of breath to walking a 5K, and the nationally recognized pediatric team that helped her.

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Fetal Surgery Saves Boys with Twin-to-Twin Transfusion Syndrome

Boys with twin-to-twin transfusion syndrome (TTTS) have lifesaving fetal surgery at 17 weeks and become happy, healthy babies. Read their story.

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Fetal Surgery Saves Her Twins' Lives

A woman whose unborn babies had twin-to-twin transfusion syndrome (TTTS) has healthy, full-term babies after close monitoring and a fetal laser procedure.

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Finally Leukemia-Free at Age 6

Family-centered care helps parents cope with their young son's acute lymphocytic leukemia (ALL) diagnosis. Find out how he made a full recovery.

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From Tiny Preemie to Nonstop Toddler

A 3-pound preemie with tracheoesophageal fistula and unable to swallow had surgery hours after birth. Now he's a toddler who loves animals.

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Girl With Cystic Fibrosis (CF) Breathes Freely for the First Time

A girl with cystic fibrosis (CF) is given an innovative drug under UCSF pediatric pulmonologists' care and goes from zero energy to Zumba classes.

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IMRT Radiation for Bone Cancer Saves Her Leg

A 5-year-old with aggressive bone cancer receives high-dose radiation therapy (IMRT) from pediatric cancer specialists to save her leg. Read more.

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Intensive Migraine Headache Treatment Gives Teen His Life Back

A teen with severe migraines gets long-term relief after intensive inpatient treatment from our pediatric migraine specialists. See the story.

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Lydia's Lung Failure and How Doctors Saved Her

A girl with lung failure fully recovers after UCSF pediatric doctors remove a blood clot from her chest and open her collapsed left lung. Find out more.

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Myasthenia Gravis: BMT Enables Boy to Walk Again

A boy with myasthenia gravis was running out of care options. Pediatric doctors at UCSF pushed for a bone marrow transplant. Now he's going to college.

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Pacemaker Lets Boy Play Sports, Live a Normal Life

A boy born with an abnormally slow heartbeat returns to his favorite activities with the help of a pacemaker. See how it changed his life.

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Preemie With Pulmonary Hypertension Saved by Intensive Care

Intensive pediatric cardiac care saves the life of a young girl with heart failure from pulmonary hypertension and a severe respiratory infection.

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Repairing a Baby's Diaphragmatic Hernia, Before and After Birth

Newborn's congenital diaphragmatic hernia (CDH) is repaired by a world-renowned UCSF pediatric and neonatal surgeon shortly after birth. Find out more.

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Stapling Surgery Reverses 9-Year-Old's Scoliosis

A girl with progressive scoliosis now has no signs of spine curvature. Here's how vertebral body stapling (an alternative to fusion) reversed the problem.

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Teen Battling Ulcerative Colitis Wins Sports Award

A teen athlete and aspiring journalist with ulcerative colitis has surgery to remove and reconstruct his colon. Follow his journey back to wellness.

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Teen Soccer Star Back on the Field After Heart Surgery

A teen soccer player with Wolff-Parkinson-White syndrome gets back in the game after a catheter ablation procedure to correct his heart arrhythmia.

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Teenage Dystonia Patient Pain-Free After Surgery

A dystonia patient's mother tells his story of muscle spasms, disruptive pain, and the deep brain stimulation surgery that restored his quality of life.

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Teen's Blood Cancer Story and Award-Winning Documentary

A teen beat dual blood cancers (AML and MDS) via a UCSF pediatric bone marrow transplant. See the award-winning documentary she made about her experience.

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The Long Struggle With Boy's Hard-to-Treat Epilepsy

A boy with hard-to-treat MAE or Doose epilepsy gets care from pediatric epileptologists,at UCSF, and his family gets much-needed support. Read more.

Three Surgeries for Baby With a Congenital Diaphragmatic Hernia (CDH)

Born with a congenital diaphragmatic hernia (CDH), a boy undergoes multiple procedures by UCSF pediatric and fetal surgeons to repair it. Read more.

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Treating a Baby With Neuroblastoma

A 6-month-old boy with neuroblastoma is cancer-free after surgery and chemotherapy at UCSF's pediatric cancer program. Find out more.

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Treatment for Leukemia Saves Baby's Life

A baby with acute myelogenous leukemia (AML) and a 10 percent chance of survival makes a miraculous recovery after a pediatric bone marrow transplant.

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Twin-to-Twin Transfusion Syndrome Success Story

Unborn babies with twin-to-twin transfusion syndrome have lifesaving fetal surgery at UCSF and are born healthy.

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