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CancerPediatric Brain Center

Neurofibromatosis Type 1 (NF-1) and Schwannomatosis

(855) 722-8273

The Neurofibromatosis Type 1 (NF1) Clinic is a one-stop medical home for children with NF1, a genetic condition that can cause noncancerous tumors to form along nerves. Because NF1 varies in severity and symptoms, we bring together all the subspecialists essential to tailoring a treatment plan to each child's needs. We offer patient and family education, developmental support, preventive care, coordinated same-day diagnostic testing and access to cutting-edge treatments.

For pediatric patients approaching age 18, we work closely with the adult NF1 clinic to ensure a seamless transition to adult care.

Our locations (1)

    Our team

    Awards & recognition

    • U S News and World Report badge recognizing UCSF Benioff among the Best Children's Hospitals Ranked in 11 Specialties, 2024-2025

      Ranked among the nation's best in 11 specialties

    • U S News and World Report badge recognizing UCSF Benioff among the Best Children's Hospitals for Cancer, 2024-2025

      Best in Northern California for cancer care

    • U S News and World Report badge recognizing UCSF Benioff among the Best Children's Hospitals for Neurology and Neurosurgery, 2024-2025

      One of the nation's best for neurology & neurosurgery

    • in NIH funding among U.S. neurology programs

    Plan your visit

    Preparing for your appointment

    What to Bring

    • Photo I.D.
    • Health insurance card
    • Insurance authorization, if required
    • Doctor's referral, if required
    • Recent test results related to your child's condition
    • List of medications, including dosages, plus any your child is allergic to
    • List of questions you may have
    • Device or paper for taking notes

    For visitors

    Before you head to the hospital, check out our guidelines for visitors and caregivers.

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    Your Stay

    We offer valuable information to help you plan for your child's upcoming hospital stay. Find out about food services, family accommodations and more.

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    Your Child's Care Team

    Our doctors, nurses, child life specialists and other providers have special training to care for children. Meet your child's care team.

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    Interpreter Services & Communication Assistance

    Interpreter services in many languages and TDDs are available for families that need help communicating with care teams. Here's how to access them.

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    Our research initiatives

    • ucsf-childrens-cancer-program-clinical-trials-2x

      Clinical Trials at UCSF: Pediatric Cancer

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    Support services

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    Child Life Services

    Activity rooms, pet therapy and more to help kids feel at home.

    Child Life

    Certified child life specialists ease the stress and anxiety of childhood illness through therapeutic play, schooling and family-focused support.

    Family Amenities

    Family-friendly amenities help you relax and take care of yourself while staying close to your child. We offer lounges, kitchens, showers, breastfeeding rooms and more.

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    Social Services

    Social workers ease the effect of illness, injury and hospitalization on your family with counseling and assistance to help you navigate the challenges.

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    Activity Rooms

    Activity rooms offer a relaxed environment for children of all ages. Features include a playroom, digital arts studio and teen lounge. Find out more.

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    Art Therapy

    Art therapy helps kids and families express themselves, making it easier to cope with pediatric health issues. Group and bedside services are available.

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    Music Therapy Program

    Board-certified music therapists help kids cope with illness and the feelings that come with it. Find out about group activities and bedside therapy.

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    School Program

    Our schoolroom services and individual learning programs help children hospitalized at UCSF continue their education and get ready to return to school.

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    School Re-Entry Program

    We help kids return to school after hospitalization by educating staff and students about their needs and recommending needed accommodations. Read more.

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    Individual Playtime & Instruction

    If your child can't be around other kids for medical reasons, you can sign up for private sessions in our activity and school rooms. Find out how.

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    Interpreter Services & Communication Assistance

    Interpreter services in many languages and TDDs are available for families that need help communicating with care teams. Here's how to access them.

    Family Resource Center

    We help families cope with the challenges of childhood illness and hospitalization in a relaxing environment where parents can get a much-needed break.

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    Parent Support Program

    Weekly activities, including knitting, scrapbooking, chair massage and more, help family caregivers get a much-needed break. Find out more.

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    Patient Relations

    Patient relations reps and nursing supervisors are here to answer questions and address concerns. Learn about your rights, how to reach us and more.

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    Spiritual Care

    Chaplains help UCSF patients, families and staff cope with the spiritual and emotional challenges of childhood illness. Learn more.

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    International Services

    If you're coming to UCSF from outside the U.S., we coordinate your child's appointments and provide other helpful services. Here's how to get started.

    Saving future lives

    500+ UCSF investigators are researching cures for hundreds of childhood and adult diseases.

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