Single-Ventricle Home Monitoring Program

Babies with single-ventricle heart defects often need a series of corrective surgeries, starting soon after birth. The Single-Ventricle Home Monitoring Program was developed for families of babies with hypoplastic left heart syndrome (HLHS) to help them support their little ones at home between the Norwood and Glenn procedures. This UCSF program got its start in 2013, thanks to a grant from the Elle Foundation, and is now supported by contributions from generous donors.

While you're at home after the first surgery, your baby's heart is working twice as hard as normal. Our home monitoring program is set up to anticipate problems and support you through this vulnerable time.

You'll be fully trained and provided with tools and resources for monitoring your baby's well-being. These include round-the-clock access to a cardiac specialist, devices for measuring vital signs daily, and more.

Our program offers parents:

  • In-depth teaching and care training before you take your baby home
  • 24/7 access to the attending cardiologist
  • A home scale and other tools for daily recordings of your child's weight, heart rate, oxygen saturation and feedings (a physician will be available for you to contact if you get unusual readings)
  • Weekly telehealth visits with one of our nurse practitioners
  • Support from a dietitian, as needed
  • Weekly updates for your primary cardiologist, documented in your baby's medical record

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