Pulmonary Hypertension Program
The Pediatric Pulmonary Hypertension Program is one of the leading programs of its kind in the United States. Dedicated to improving the quality of life for pediatric patients with pulmonary hypertension (PH), we focus on early detection, state-of-the-art treatment and long-term follow-up care.
We treat all types of pulmonary hypertension, including idiopathic PH, persistent PH of the newborn (PPHN) and secondary PH caused by another condition. One key to our program's strength is the combined experience and knowledge of many specialists. The team brings together pediatric intensive care specialists, neonatologists, cardiologists, pulmonologists and nurse practitioners, all with expertise in caring for children with PH.
Ours is the only pediatric program program in California and one of the few nationwide to be accredited as a Pulmonary Hypertension Center of Comprehensive Care by the Pulmonary Hypertension Association.
Camp for kids with PH
Our Pulmonary Hypertension Family Camp (PHamily Camp) gives children with PH a chance to be active and enjoy experiences that kids who don't have serious illnesses take for granted. At camp, they can experience the magic of a campfire and the camaraderie of camp life with the support of a caring camp staff.
PHamily Camp focuses on:
- Empowering children with PH
- Bringing families of children with PH together to share experiences and support
- Providing unique educational opportunities for clinicians from UCSF and Stollery PH centers to engage with families and patients in a safe and open environment
International conference: Neonatal and Childhood Pulmonary Vascular Disease
UCSF hosts this leading international conference annually. It brings together international experts to explore our current understanding of the basics as well as new and future therapies for pulmonary vascular diseases in newborns, children and adults.
The conference includes education sessions for families and patients.
Clinical trials and research
In addition to providing the best available therapies, we're committed to researching promising new treatments. Our patients often have opportunities to participate in clinical trials and are among the first to benefit from the latest findings.
Make a donation
Donate to support the Pediatric Pulmonary Hypertension Program at UCSF.
Our locations (3)
PNP, MSNPediatric nurse practitioner
MDPediatric critical care specialist
PNP, MSNPediatric nurse practitioner
LCSW, MSWClinical social worker
The patient's perspective
Teen suspects she has heart condition, gets diagnosis of pulmonary hypertension
Baby receives life-saving care from specialized pulmonary hypertension program
A Study to Assess Whether Macitentan Delays Disease Progression in Children With Pulmonary Arte...
Time to the first of the following CEC-confirmed disease progression events: • Death (all causes) • Atrial septostomy or Potts' anastomosis, or registration on lung transplant list • Hospitalization due to worsening PAH • Clinical...
Awards & recognition
Ranked among the nation's best in 10 specialties
One of the nation’s best in cardiology & heart surgery
Accredited pediatric center for comprehensive care (Pulmonary Hypertension Association)
Plan your visit
What to Bring
- Photo I.D.
- Health insurance card
- Insurance authorization, if required
- Doctor's referral, if required
- Recent test results related to your child's condition
- List of medications, including dosages, plus any your child is allergic to
- List of questions you may have
- Device or paper for taking notes
New visitor rules
Patients may have only one visitor at a time and switch visitors twice a day. Thanks!
We offer valuable information to help you plan for your child's upcoming hospital stay. Find out about food services, family accommodations and more.
Your Child's Care Team
Our doctors, nurses, child life specialists and other providers have special training to care for children. Meet your child's care team.
Interpreter Services & Communication Assistance
Interpreter services in many languages and TDDs are available for families that need help communicating with care teams. Here's how to access them.
Learning never stops