Pulmonary Hypertension Program

The Pediatric Pulmonary Hypertension Program is one of the leading programs of its kind in the United States. Dedicated to improving the quality of life for pediatric patients with pulmonary hypertension (PH), we focus on early detection, state-of-the-art treatment and long-term follow-up care.

We treat all types of pulmonary hypertension, including idiopathic PH, persistent PH of the newborn (PPHN) and secondary PH caused by another condition. One key to our program's strength is the combined experience and knowledge of many specialists. The team brings together pediatric intensive care specialists, neonatologists, cardiologists, pulmonologists and nurse practitioners, all with expertise in caring for children with PH.

Ours is the only pediatric program program in California and one of the few nationwide to be accredited as a Pulmonary Hypertension Center of Comprehensive Care by the Pulmonary Hypertension Association.

Camp for kids with PH

Our Pulmonary Hypertension Family Camp (PHamily Camp) gives children with PH a chance to be active and enjoy experiences that kids who don't have serious illnesses take for granted. At camp, they can experience the magic of a campfire and the camaraderie of camp life with the support of a caring camp staff.

PHamily Camp focuses on:

  • Empowering children with PH
  • Bringing families of children with PH together to share experiences and support
  • Providing unique educational opportunities for clinicians from UCSF and Stollery PH centers to engage with families and patients in a safe and open environment

International conference: Neonatal and Childhood Pulmonary Vascular Disease

UCSF hosts this leading international conference annually. It brings together international experts to explore our current understanding of the basics as well as new and future therapies for pulmonary vascular diseases in newborns, children and adults.

The conference includes education sessions for families and patients.

Clinical trials and research

In addition to providing the best available therapies, we're committed to researching promising new treatments. Our patients often have opportunities to participate in clinical trials and are among the first to benefit from the latest findings.

Make a donation

Donate to support the Pediatric Pulmonary Hypertension Program at UCSF.

Our locations (3)

    The patient's perspective

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    Teen suspects she has heart condition, gets diagnosis of pulmonary hypertension

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    Baby receives life-saving care from specialized pulmonary hypertension program

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    Awards & recognition

    • Ranked among the nation's best in 10 specialties

    • One of the nation's best in cardiology & heart surgery

    • Accredited pediatric center for comprehensive care (Pulmonary Hypertension Association)

    Plan your visit

    Preparing for your appointment

    What to Bring

    • Photo I.D.
    • Health insurance card
    • Insurance authorization, if required
    • Doctor's referral, if required
    • Recent test results related to your child's condition
    • List of medications, including dosages, plus any your child is allergic to
    • List of questions you may have
    • Device or paper for taking notes

    New visitor rules

    Patients may have only one visitor at a time and switch visitors twice a day. Thanks!

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    Your Stay

    We offer valuable information to help you plan for your child's upcoming hospital stay. Find out about food services, family accommodations and more.

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    Your Child's Care Team

    Our doctors, nurses, child life specialists and other providers have special training to care for children. Meet your child's care team.

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    Interpreter Services & Communication Assistance

    Interpreter services in many languages and TDDs are available for families that need help communicating with care teams. Here's how to access them.

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    Support services

    Child Life Services

    Activity rooms, pet therapy and more to help kids feel at home.

    Child Life

    Certified child life specialists ease the stress and anxiety of childhood illness through therapeutic play, schooling and family-focused support.

    Family Amenities

    Family-friendly amenities help you relax and take care of yourself while staying close to your child. We offer lounges, kitchens, showers, breastfeeding rooms and more.

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    Social Services

    Social workers ease the effect of illness, injury and hospitalization on your family with counseling and assistance to help you navigate the challenges.

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    Activity Rooms

    Activity rooms offer a relaxed environment for children of all ages. Features include a playroom, digital arts studio and teen lounge. Find out more.

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    Art Therapy

    Art therapy helps kids and families express themselves, making it easier to cope with pediatric health issues. Group and bedside services are available.

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    Music Therapy Program

    Board-certified music therapists help kids cope with illness and the feelings that come with it. Find out about group activities and bedside therapy.

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    School Program

    Our schoolroom services and individual learning programs help children hospitalized at UCSF continue their education and get ready to return to school.

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    School Re-Entry Program

    After hospitalization, we help kids return to school by educating staff and students about their needs and recommending needed accommodations. Read more.

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    Individual Playtime & Instruction

    If your child can't be around other kids for medical reasons, you can sign up for private sessions in our activity and school rooms. Find out how.

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    Interpreter Services & Communication Assistance

    Interpreter services in many languages and TDDs are available for families that need help communicating with care teams. Here's how to access them.

    Family Resource Center

    We help families cope with the challenges of childhood illness and hospitalization in a relaxing environment where parents can get a much-needed break.

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    Parent Support Program

    Weekly activities, including knitting, scrapbooking, chair massage and more, help family caregivers get a much-needed break. Find out more.

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    Patient Relations

    Patient relations reps and nursing supervisors are here to answer questions and address concerns. Learn about your rights, how to reach us and more.

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    Spiritual Care

    Chaplains help UCSF patients, families and staff cope with the spiritual and emotional challenges of childhood illness. Learn more.

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    International Services

    If you're coming to UCSF from outside the U.S., we coordinate your child's appointments and provide other helpful services. Here's how to get started.

    Can't find what you're looking for?

    UCSF Help Center

    (888) 689-8273

    Soothing the soul

    Our music therapy program nurtures patients with bedside serenades, rap workshops and more.

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