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Pulmonary Hypertension Program

The Pediatric Pulmonary Hypertension Program is one of the leading programs of its kind in the United States. Dedicated to improving the quality of life for pediatric patients with pulmonary hypertension (PH), we focus on early detection, state-of-the-art treatment and long-term follow-up care.

We treat all types of pulmonary hypertension, including idiopathic PH, persistent PH of the newborn (PPHN) and secondary PH caused by another condition. One key to our program's strength is the combined experience and knowledge of many specialists. The team brings together pediatric intensive care specialists, neonatologists, cardiologists, pulmonologists and nurse practitioners, all with expertise in caring for children with PH.

Ours is the only pediatric program program in California and one of the few nationwide to be accredited as a Pulmonary Hypertension Center of Comprehensive Care by the Pulmonary Hypertension Association.

Camp for kids with PH

Our Pulmonary Hypertension Family Camp (PHamily Camp) gives children with PH a chance to be active and enjoy experiences that kids who don't have serious illnesses take for granted. At camp, they can experience the magic of a campfire and the camaraderie of camp life with the support of a caring camp staff.

PHamily Camp focuses on:

  • Empowering children with PH
  • Bringing families of children with PH together to share experiences and support
  • Providing unique educational opportunities for clinicians from UCSF and Stollery PH centers to engage with families and patients in a safe and open environment

International conference: Neonatal and Childhood Pulmonary Vascular Disease

UCSF hosts this leading international conference annually. It brings together international experts to explore our current understanding of the basics as well as new and future therapies for pulmonary vascular diseases in newborns, children and adults.

The conference includes education sessions for families and patients.

Clinical trials and research

In addition to providing the best available therapies, we're committed to researching promising new treatments. Our patients often have opportunities to participate in clinical trials and are among the first to benefit from the latest findings.

Make a donation

Donate to support the Pediatric Pulmonary Hypertension Program at UCSF.

Our locations (4)

    The patient's perspective

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    Dramatic Recovery for Teen With Pulmonary Hypertension

    Follow a teen's pulmonary hypertension journey, from always out of breath to walking a 5K, and the nationally recognized pediatric team that helped her.

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    A Lifesaver for Baby: Specialized Pulmonary Hypertension Care

    A baby with a congenital diaphragmatic hernia (CDH) and pulmonary hypertension (PH) has hernia repair surgery and infusion therapy for PH at UCSF.

    Decorative Caduceus

    Pediatric Pulmonary Hypertension Network (PPHNet) Informatics Registry

    Death

    Recruiting

    More about this study
    Decorative Caduceus

    A Study to Assess Whether Macitentan Delays Disease Progression in Children With Pulmonary Arte...

    Observed steady-state trough plasma concentration of macitentan and its active metabolite ACT-132577 will be reported.

    Recruiting

    More about this study
    See all clinical trials

    Awards & recognition

    • Ranked among the nation's best in 10 specialties

    • One of the nation's best in cardiology & heart surgery

    • Accredited pediatric center for comprehensive care (Pulmonary Hypertension Association)

    Related clinics (9)

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    Arrhythmia Center

    Arrhythmia Center

    San Francisco / Oakland

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    Cardiology Clinic

    Cardiology Clinic

    San Francisco / Oakland / Berkeley / Brentwood / Eureka / Fairfield / Fr...

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    Cardiopulmonary Exercise Lab

    Cardiopulmonary Exercise Lab

    San Francisco / Oakland

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    Cardiothoracic Surgery Program

    Cardiothoracic Surgery Program

    San Francisco / Oakland

    cardiac-imaging-service-320x320-2x 21

    Echocardiography Imaging Program

    Echocardiography Imaging Program

    San Francisco / Oakland / Berkeley / Brentwood / Eureka / Fairfield / Fr...

    Healthy Hearts & Minds Program

    Healthy Hearts & Minds Program

    1825 Fourth St., Sixth Floor, 6A
    San Francisco, CA 94158

    2

    Interventional Cardiology Program

    Interventional Cardiology Program

    San Francisco / Oakland

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    Pediatric Cardiac Intensive Care Unit

    Pediatric Cardiac Intensive Care Unit

    San Francisco / Oakland

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    3D+ Program

    3D+ Program

    550 16th St., Fifth Floor, Box 0544
    San Francisco, CA 94158

    Plan your visit

    Preparing for your appointment

    What to Bring

    • Photo I.D.
    • Health insurance card
    • Insurance authorization, if required
    • Doctor's referral, if required
    • Recent test results related to your child's condition
    • List of medications, including dosages, plus any your child is allergic to
    • List of questions you may have
    • Device or paper for taking notes

    New visitor rules

    Before you head to the hospital, check our special COVID-19 rules for visitors. Thanks!

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    Your Stay

    We offer valuable information to help you plan for your child's upcoming hospital stay. Find out about food services, family accommodations and more.

    Learn more
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    Your Child's Care Team

    Our doctors, nurses, child life specialists and other providers have special training to care for children. Meet your child's care team.

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    Interpreter Services & Communication Assistance

    Interpreter services in many languages and TDDs are available for families that need help communicating with care teams. Here's how to access them.

    Learn more

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    UCSF Help Center

    (888) 689-8273

    Our research initiatives

    Saving future lives

    500+ UCSF investigators are researching cures for hundreds of childhood and adult diseases.

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