Hereditary Hemorrhagic Telangiectasia (HHT) Center

The Pediatric Hereditary Hemorrhagic Telangiectasia (HHT) Center specializes in caring for patients with HHT, a genetic disorder that causes blood vessels to develop abnormally. We have been designated a Center of Excellence by Cure HHT, the leading organization for HHT research funding, education and patient advocacy.

HHT can affect blood vessels in many parts of the body from the skin to the liver to the brain, so our care team is made up of many different medical specialists. Depending on the symptoms, your child may be seen by experts in interventional and neurointerventional radiology, pediatrics, medical genetics, hematology, otolaryngology – head and neck surgery, cardiology, dermatology, gastroenterology, neurology, neurological surgery or pulmonology.

We trace each patient's family history of HHT and work closely with referring doctors to develop a treatment plan to address the child's symptoms and complications of HHT. We offer advanced screening and diagnostic tests for serious complications, such as arteriovenous malformations, abnormal tangles of arteries and veins in the brain. We are able to treat many complications through minimally invasive surgery.

Our clinic is associated with the Center for Cerebrovascular Research (CCR), which focuses on vascular malformations of the brain. CCR has a special interest in HHT, one of the few inherited causes of arteriovenous malformations. The neurointerventional radiologists on our team pioneered many of the procedures and devices used to treat arteriovenous malformations.

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    Awards & recognition

    • us news ranked in 10 specialites badge 2020-2021

      Ranked among the nation's best in 10 specialties

    • One of the nation's best in neurology & neurosurgery

    • in NIH funding among U.S. neurology programs

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    What to Bring

    • Photo I.D.
    • Health insurance card
    • Insurance authorization, if required
    • Doctor's referral, if required
    • Recent test results related to your child's condition
    • List of medications, including dosages, plus any your child is allergic to
    • List of questions you may have
    • Device or paper for taking notes

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    Your Stay

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    Your Child's Care Team

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    Interpreter Services & Communication Assistance

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    Support services

    Child Life Services

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    Child Life

    Certified child life specialists ease the stress and anxiety of childhood illness through therapeutic play, schooling and family-focused support.

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    Family-friendly amenities help you relax and take care of yourself while staying close to your child. We offer lounges, kitchens, showers, breastfeeding rooms and more.

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    Social Services

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    Activity Rooms

    Activity rooms offer a relaxed environment for children of all ages. Features include a playroom, digital arts studio and teen lounge. Find out more.

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    Art Therapy

    Art therapy helps kids and families express themselves, making it easier to cope with pediatric health issues. Group and bedside services are available.

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    Music Therapy Program

    Board-certified music therapists help kids cope with illness and the feelings that come with it. Find out about group activities and bedside therapy.

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    School Program

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    School Re-Entry Program

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    Individual Playtime & Instruction

    If your child can't be around other kids for medical reasons, you can sign up for private sessions in our activity and school rooms. Find out how.

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    Interpreter Services & Communication Assistance

    Interpreter services in many languages and TDDs are available for families that need help communicating with care teams. Here's how to access them.

    Family Resource Center

    We help families cope with the challenges of childhood illness and hospitalization in a relaxing environment where parents can get a much-needed break.

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    Parent Support Program

    Weekly activities, including knitting, scrapbooking, chair massage and more, help family caregivers get a much-needed break. Find out more.

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    Patient Relations

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    Spiritual Care

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    International Services

    If you're coming to UCSF from outside the U.S., we coordinate your child's appointments and provide other helpful services. Here's how to get started.

    Feeling at home

    From bedside bingo to therapy dogs, we're here to help kids smile and feel more like themselves.

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