Velocardiofacial Syndrome

Children with VCFS should be seen by a nurse from the Center for Craniofacial Anomalies shortly after birth, to ensure they can feed and breathe adequately. Within the first two months of life, they should be seen for a full craniofacial team evaluation.

Children with VCFS can have a range of characteristics, which will dictate the proper treatment. If a child has a cleft palate, it should be repaired at the usual time, when the infant is around 10 months old or starting to make sounds of speech.

If there's evidence of developmental delay, the child should be referred to an infant stimulation program to receive thorough developmental testing and appropriate interventions. In California, parents should contact their local Department of Developmental Services regional center, which can help you access and coordinate special services for children with developmental delays. Such programs are available to all eligible children regardless of income.

Speech problems are common in VCFS, and many patients require speech therapy.

A child with VCFS may encounter social and emotional challenges unique to this condition. Support organizations and resources are available for children and their families — see our listings in Other Resources, particularly the VCFS Educational Foundation.

Reviewed by health care specialists at UCSF Benioff Children's Hospital.

Related Information

UCSF Clinics & Centers

Craniofacial Center
1825 Fourth St., Fifth Floor, 5C
San Francisco, CA 94158
Phone: (415) 476-2271
Fax: (415) 476-9513
Appointment information

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