Van der Woude Syndrome

The treatment of clefts in children with van der Woude syndrome is similar to treatment for cleft lip and palate alone. We surgically repair the cleft lip at 3 months of age and the cleft palate at 10 months of age. Lip pits are usually removed at the time of the cleft lip or palate surgery.

Because cleft palate can interfere with feeding, children with a cleft palate will need to be evaluated soon after birth to develop a feeding plan. Most babies will need to be bottle fed using breast milk or formula from a bottle with a special nipple. It's important to bring your baby to the pediatrician for weekly weight checks.

Cleft lips may be taped soon after birth to help reduce the width of the cleft, in preparation for surgery.

These surgeries take two to three hours and the child remains in the hospital one to two nights.

Since ear infections are more common in children with a cleft palate, a hearing test is recommended to determine whether ventilating or PE tubes, which reduce the risk of ear infections, should be placed in the ears at the time of the palate surgery. In addition, an eye examination is usually recommended because eye anomalies are sometimes found in children with cleft lip and palate.

Orthodontic treatment with braces and alveolar bone grafting to fill the remaining gap in the gum line are usually necessary. The first phase of treatment is usually to widen the upper jaw with an orthodontic appliance when the permanent front teeth have come in, at around seven years of age. The bone grafting surgery is done after the widening is complete. The final orthodontic treatment is started later, after most of the permanent teeth are in.

Reviewed by health care specialists at UCSF Benioff Children's Hospital.

Related Information

UCSF Clinics & Centers

Craniofacial Center
1825 Fourth St., Fifth Floor, 5C
San Francisco, CA 94158
Phone: (415) 476-2271
Fax: (415) 476-9513
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