Neuromuscular Clinic
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The Neuromuscular Clinic at UCSF Benioff Children's Hospital, sponsored by the Muscular Dystrophy Association, specializes in the diagnosis, treatment and research of disorders affecting the peripheral nerves and muscle. This includes the muscular dystrophies, a group of about 40 inherited disorders that cause the muscles to weaken and degenerate over time; genetic disorders of the peripheral nerves, known as Charcot-Marie-Tooth; and spinal muscular atrophy. The center is the only one of its kind in San Francisco that was created specifically for children. Parent Project Muscular Dystrophy has named our clinic a Certified Duchenne Care Center, which signifies centers that provide high-quality, comprehensive care for Duchenne muscular dystrophy.

We offer children and their families access to doctors, nurses and therapists who specialize in treating children. Our team includes a pediatric neuromuscular specialist, orthopedic surgeon, pulmonologist, cardiologist, orthotics specialist and respiratory, physical and occupational therapists, who address all aspects of your child's care in one place.

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Although there is no cure for these neuromuscular diseases, there are new therapies to help manage the conditions and their complications. We work with children and their families to develop individualized treatment to improve mobility, comfort and quality of life. Treatments may include physical therapy, orthopedic surgery, medications and orthoses, or devices to support movement and stability.

We also offer the most advanced tests for diagnosis, such as electromyography (EMG). Our patients and their families can benefit from genetic testing and counseling, which can help diagnose neuromuscular conditions and confirm if a person is a carrier of the gene that causes the disorder. People with MD have incorrect or missing information in their genes that prevents them from making the proteins needed for healthy muscles.

A Muscular Dystrophy Fund is available for families with limited funds or for those who do not have insurance coverage for their children's health care. This fund is allocated on a needs basis. For more information, please ask the clinic receptionist.

About the Pediatric Brain Center

The Muscular Dystrophy Clinic is part of the UCSF Pediatric Brain Center, which brings together doctors from all disciplines related to brain health in children. We are passionate about collaborating with each other, our patients and their families to provide the best possible care for each child.

Our experts are world-class pediatric specialists in neurology, neurosurgery, neurocritical care, neurogenetics, neuro-oncology, rehabilitation, neuroradiology, neuropsychology and psychiatry. By working as a team we are able to reach the right diagnosis and treatment quickly, getting our patients on the road to recovery and bringing peace of mind to parents.

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Getting Here

Pediatric Muscular Dystrophy
Ron Conway Family Gateway Medical Building
1825 Fourth St., Sixth Floor
San Francisco, CA 94158
Phone: (415) 353-7596
Fax: (415) 353-2400

Hours: Wednesdays, 8 a.m. – noon

What to Bring

  • Health insurance information including authorizations and referrals
  • List of your child's prescription medications and dosages
  • List of your child's medication allergies
  • List of questions you may have
  • Recent test results related to your child's condition
  • Paper and pencil to take notes

Research and Clinical Trials

Parking

Parking at Mission Bay

Public parking options at UCSF's Mission Bay campus include:

Weekdays: $3.75/hour
Daily Maximum: $30/day

More Information

Download a Mission Bay campus map

Public Transportation

UCSF Medical Center at Mission Bay is accessible via the following Muni bus routes:

  • 22
  • 55
  • T-Third Street line

More Information

(415) 673-6864 (MUNI)
SFMTA website

UCSF Shuttles

Free UCSF shuttles connect the Mission Bay campus with our Mount Zion and Parnassus campuses as well as other UCSF locations and the 16th Street BART station.

More Information

Shuttle routes and timetables
Shuttle system map
Shuttle hotline: (415) 476-4646 (GOGO)

Online Second Opinion

Get a Second Opinion

This clinic offers an online second opinion service. This service gives families across the U.S. and abroad access to leading pediatric specialists at UCSF. If you are facing a complex medical issue or difficult treatment decision for your child, having a second opinion from a world-class academic medical center can provide valuable guidance and peace of mind. Because everything is done remotely, there is no need to travel to San Francisco.

Learn more about the online second opinion program.

Related Information

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Clinics & Centers

Our Team

Gwynne Church
Gwynne Church, MD
Pediatric pulmonologist and sleep disorders specialist
Desiree Dieste
Desiree Dieste, MSW, MPH
Pediatric social worker
Alex Fay
Alex Fay, MD
Pediatric neurologist and neuromuscular specialist
Scott Soifer
Scott Soifer, MD
Pediatric cardiologist and critical care specialist
Jonathan Strober
Jonathan Strober, MD
Pediatric neurologist and neuromuscular specialist