Episode Five: What Comes Next?
Listen to episode five
Episode length: 26:25
The potential of CRISPR is enormous, but how does cutting-edge science get applied in the real world? We hear from patients on their views and the need for strong relationships to care providers. The powerful innovation also means thinking about how treatments can be made accessible, both in the US and globally, and the unique role UCSF and the UC consortium as public institutions play the in Oakland clinical trial.
Episode Five: What Comes Next?
Akintunde (Tunde) Ahmad
Tunde is a multimedia journalist focused on the intersection of education, economic inequality, and the justice system. An East Oakland native, he holds a BA in sociology from Yale University and an MS in journalism and documentary film from Columbia University.
Brooklyn is an Oakland native and has been a patient at Benioff Children’s Hospital Oakland since she was two-months old. She considers her Oakland medical staff as family. Brooklyn is passionate about sharing her sickle cell experiences with others, and recently started her own Instagram support group for adults with sickle cell disease.
Melinda Kliegman, PhD
Dr. Kliegman is the Director of Public Impact at the Innovative Genomics Institute and holds a PhD in Biology from Stanford University. She previously worked at the Bill & Melinda Gates Foundation, advising on the use of genome editing in agriculture and human health. She also spent time with the U.S. Department of Agriculture, where she served as a Science Advisor to the Foreign Agricultural Service.
Frans Kuypers, PhD
Dr. Kuypers is a Senior Scientist at Benioff Children’s Hospital Oakland. For over 30 years, his work has focused on cell membrane biology and hemoglobinopathies and the systems leading to the pathology in sickle cell disease and thalassemia. He co-led a groundbreaking study on harvesting placental stem cells.
Christabel is a first-generation Nigerian/Ghanaian-American opera singer and Oakland creative. She first discovered her love for music in her youth as a member of The Young Musicians Program and went on to study classically at The University of Michigan School of Music, Theatre and Dance. Through her art, she hopes to facilitate healing within her community and inspire change-makers in society.
Tolbert Small, MD
Dr. Small is a physician, poet, social activist and humanist. He worked as the leading physician for the Oakland based Black Panther Party, setting up their national sickle cell anemia foundation and the George Jackson free clinic. He and his wife, Anola Small, co-founded the Harriet Tubman Medical Office, where he began a practice in 1980.
Norma holds Masters’ degrees in Health Sciences and Marital and Family Therapy. She co-founded and was an executive for nonprofits, community clinics, and social service organizations in California and Rwanda. She has received local and national recognition for her social justice work spanning 50 year around physical, mental, and women’s health.
Marsha J. Treadwell, PhD
Dr. Treadwell is a psychologist who cares for children and families living with medical conditions and undergoing treatments, with a special focus on those affected by sickle cell disease. She helps patients and families develop and maintain resilience to better cope with stress. She is Co-Director of the UCSF Sickle Cell Center of Excellence, and Professor in the UCSF Department of Pediatrics Division of Hematology.
Fyodor Urnov, PhD
Dr. Urnov is a Professor of Molecular and Cell Biology at the University of California, Berkeley, and Director of Technology and Translation at the Innovative Genomics Institute. His research focuses on advancing genome editing technology and pushing the boundaries of how it can be applied to solve real-world problems.
Elliott Vichinsky, MD
Dr. Vichinsky is a board-certified pediatric hematologist/oncologist with a major interest in understanding and improving the care of patients with hemoglobinopathies. He is the Director of the UCSF Sickle Cell Center of Excellence, Professor in Residence at UCSF, as well as the Director of the Northern California Thalassemia Center.
Mark Walters, MD
Dr. Walters is a Professor in Residence in the UCSF Department of Pediatrics, who specializes in blood and bone marrow transplants. He is also director of the Pediatric Blood and Marrow Transplant Program at UCSF Benioff Children's Hospital Oakland. Walters' research focuses on transplant and gene therapy for sickle cell disease and thalassemia – which are both red blood cell disorders that involve abnormalities of hemoglobin (the protein in red blood cells that carries oxygen).
Wanda is a founding member and current co-chair of the Sickle Cell Community Advisory Council (SCCAC) of Northern California, and a former high school teacher and school administrator for the Hayward Unified School District. As a person with sickle cell disease, she has spent most of her life advocating for people living with the disease.