University of California San Francisco | About UCSF | UCSF Medical Center
Search Site | Find a Doctor

Survivors of Childhood Cancer

The UCSF Survivors of Childhood Cancer Program helps survivors of pediatric cancer achieve optimal physical and emotional health through medical care, education and research.

About one in 500 young adults in the United States is a survivor of pediatric cancer due, in part, to advancements in cancer treatments that have increased survival rates. Many new treatments, however, are now known to cause long-term side effects that occur years and even decades later.

If you are a survivor of childhood cancer, it is important to receive long-term, follow-up care by heath care professionals knowledgeable about your medical history.

Pediatric cancer survivors may face a host of issues including:

  • Fertility problems
  • Learning difficulties
  • Problems accessing health care and obtaining insurance
  • Psychological and emotional problems
  • Secondary cancers
  • Treatment-related organ dysfunction

Our Team

Our team of experts specialize in the care of childhood cancer survivors:

  • Dr. Robert Goldsby, medical director and pediatric cancer specialist
  • Dr. Arthur Ablin, pediatric cancer specialist
  • Shannon Raber, nurse practitioner and program coordinator
  • Linda Li, clinical research coordinator
  • Monica Jarman, social worker

We work with you to address your specific needs and concerns.

Survivors Clinic

The Survivors Clinic is held bi-weekly for survivors of pediatric cancer who have completed treatment at least two years ago. The clinic visit includes a consultation with a pediatric cancer specialist, nurse and social worker. A phone consultation with a school liaison may be scheduled upon request. The entire visit takes one or more hours and includes:

  • Physical exam — A cancer specialist and nurse will review your original diagnosis, treatments received and the effects of therapy on your present and future health. The latest research regarding treatments, potential side effects and diagnosis will be discussed.
  • Social Work — A social worker will discuss issues such as school, work, family and mental well-being. If needed, referrals to support programs are provided.
  • School Liaison — A school liaison provides information about educational benefits available to cancer survivors and potential learning obstacles associated with certain cancer treatments.

Prior to your clinic visit, we may request that you undergo certain tests, such as X-rays, blood work and other procedures that monitor your health. Our clinic coordinator will discuss these tests prior to your clinic visit and will assist you with any health insurance issues.

Survivor Health Passport

After visiting the Survivors Clinic, you'll receive a Survivor Health Passport, a wallet-sized card that includes information about your disease and treatment history, risk factors and follow-up recommendations based on the Children's Oncology Group (COG) guidelines. These guidelines can be viewed at www.survivorshipguidelines.org. The Survivor Health Passport should be carried by patients and shared with other health care providers to ensure the best possible follow-up care.

To Visit Us

We recommend that you visit the Survivors Clinic at the following intervals — two years after completing treatment, five years after completing treatment and then once every five years. More frequent visits can be arranged as needed.

Our clinic coordinator can assist you with any health insurance matters, such as authorization for the clinic visit and pre-visit tests.

The Survivors Clinic is held in the afternoon of every other Wednesday of each month.

To schedule an appointment, please call (415) 353-2986.

For more information, please call (415) 476-7910 or (415) 476-2536.

We are located at:

Survivors Clinic
UCSF Benioff Children's Hospital
400 Parnassus Ave.
Suite A-101
San Francisco, CA 94143-0134

Make A Donation

The UCSF Survivors of Childhood Cancer Program and Survivors Clinic are publicly supported, 501(c) (3) non-profit programs with no permanent endowment. The services we provide are made possible solely by the generosity of our friends and sponsors. Some of our sponsors include Swim Across America San Francisco, Naish Foundation and Campini Foundation.

To make a donation, please make your gift payable to UCSF Foundation/Survivors of Childhood Cancer Program and send to:

Pediatric Hematology/Oncology
UCSF Benioff Children's Hospital
P.O. Box 0106
505 Parnassus Ave. Room 649
San Francisco, CA 94143
Attention: Diana Block

For more information on our program, please contact Dr. Robert Goldsby at (415) 476-3831.

Program Support

The UCSF Benioff Children's Hospital Survivors of Childhood Cancer Program is supported in part by Swim Across America. Swim Across America is a 20-year-old, non-profit organization founded to raise money and awareness for cancer research, prevention, and treatment by sponsoring swimming events throughout the United States.

To make an online contribution to an existing team, or to register yourself or your team for this event, please visit the Swim Across America website at www.swimacrossamerica.org and find the San Francisco event.

Related Information

Ways to Give

How to Reach Us

To schedule an appointment, please call (415) 353-2986.

For more information, please call (415) 476-7910 or (415) 476-2536.

Related Conditions