Support Groups

Support groups at UCSF Benioff Children's Hospital help patients and their families cope with disease and treatment and learn from the experiences of others. Here are a few of the support groups available to our patients and their parents.

Blood and Marrow Transplant Parent Support Group

Parents of children who received bone marrow transplants at UCSF Benioff Children's Hospital share advice and provide support one another and are encouraged to attend while their children are in the hospital and also after their children are discharged home. Coffee and light snacks are provided by Starbucks.

Location: UCSF Benioff Children's Hospital, 505 Parnassus Ave., Seventh Floor, Long wing waiting room
Meetings: At least once a month, more frequently as needed from 1 to 2 p.m.
Contact: Amanda Kice, social worker (415) 353-2896

Young Adults with Cancer

This support group is a place for people in their 20s and 30s to come together to share their stories, insights and offer support to each other. The group is open to people with all types of cancer at all stages of disease and treatment, including people who are post-treatment, but are looking for a cancer support community.

Location: UCSF Cancer Resource Center, 1600 Divisadero St.
Meetings: The first and third Monday of the month at 6:30 p.m.
Contact: Keren Stronach (510) 540-5147

Disorders of Sex Development Parent Support Group

This support group is for parents of children with disorders of sex development (DSD). The group brings parents together to support one another and share their experiences and concerns.

Location: UCSF Medical Sciences Building, 513 Parnassus Ave.
Meetings: Second Thursday of every other month from 6:30 to 8:30 p.m.
Contact: Jane Berkeley (415) 418-0902 or jane.berkeley@ucsf.edu for specific dates and location

Epilepsy Support Group for Teens

The support group allows teens affected by epilepsy to share their stories and concerns with others in similar situations. Education and resources are presented by guest speakers.

Location: Ambulatory Care Center, 400 Parnassus Ave, Eighth Floor, Room A-888
Meetings: The first Saturday of the month from 11 a.m. to 12:15 p.m.
Contacts: Maritza Lopez, nurse (415) 353-2437 or maritza.lopez@ucsfmedctr.org

Hemophilia Support Network

A parent support network gives parents the opportunity to discuss issues of worry or concern with other parents of children with hemophilia. If you wish to talk with other parents who are raising a child with hemophilia, ask any member of the Hemophilia Treatment Center team for referrals. We also can refer you to parent support groups throughout the Bay Area.

 

To be listed in our directory, please contact webservices@ucsfmedctr.org.

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For help finding a doctor or for other assistance, contact our Physician Referral Service at (888) 689-UCSF or (888) 689-8273.

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